EarWorm

"Dialogues on hearing health that you can’t stop thinking about" EarWorm is produced by the National Center for Hearing Assessment and Management (NCHAM - pronounced "en-cham") and is one of many research centers located at Utah State University in Logan, Utah. The mission of NCHAM is to ensure that all infants and young children with hearing loss are identified as early as possible and have access to timely and appropriate audiological, educational, medical intervention, and family support services. NCHAM receives funding from multiple sources to conduct research, training, and technical assistance activities to support and improve newborn and early childhood hearing screening, diagnosis, and early intervention. NCHAM has served as the Early Hearing Detection and Intervention National Technical Resource Center (EHDI NTRC) for many years. The EHDI NTRC is currently funded as a cooperative agreement (U52MC04391) with the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) at the United States Department of Health and Human Services. The work of the EHDI-NTRC is funded in part by a cooperative agreement (U52MC04391) from the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) at the United States Department of Health and Human Services. Any views, thoughts and opinions expressed by participants in EarWorm are solely that of the participants and no endorsement by NCHAM, USU, or MCHB/HRSA is implied or expressed.

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Family-to-Family Support as a key resource when empowering families with children who are deaf or hard of hearing to become informed decision makers

2024-02-07

EarWorm Episode 007 with William Eiserman, PhD. and Janet DesGeorges

The joy of welcoming a new child can be mixed with surprise and various emotions for families learning that their child is deaf or hard of hearing. Suddenly faced with understanding their child's needs and finding ways to support their child’s success, these families are fortunately not alone. A range of dedicated professionals, including audiologists, healthcare providers, teachers of the deaf, speech-language pathologists, and early intervention specialists are ready to support, assist and educate. Each offers unique and crucial support. Additionally, the value of parent-to-parent or family to family support is immense, providing not just emotional support to one another but also practical information and guidance and real-life examples of successful approaches to nurturing the growth and development of deaf or hard-of-hearing children. In this episode of Earworm, we delve into the various aspects of family-to-family support and explore how it can significantly benefit families with deaf or hard-of-hearing children, emphasizing the importance of having easy access to this valuable resource early on in the process. Janet DesGeorges lives in Boulder, Colorado with her husband, Joe and is mom to three daughters, including Sara, who is deaf/hard of hearing. Janet is a co-founder and Executive Director of Hands & Voices Headquarters, a non-profit parent support and advocacy organization for families who have children who are hard of hearing/deaf. Janet is recognized as a national parent leader and has presented worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. She has authored a number papers, chapters and practical tools that aim to empower families as informed decision makers for their children and has been the principal investigator of several federal grants that help to support the work of Hands and Voices.

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Filetype: MP3 - Size: 61 MB - Duration: 32:12m (256 kbps 44100 Hz)

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