You are invited to 2022 Newborn Screening Translational Research Network (NBSTRN) Network Meeting: Efforts in Policy and Research to Advance Newborn Screening on July 19-20, 2022, from 12-4pm (EST).

The event is free, but participants must register at https://nbstrn.org/2022-Network-Meeting. Once registered, you will receive a separate email with the Zoom information to attend the virtual meeting.

Each day, four sessions will highlight the latest research updates from NBSTRN partners, stakeholders, CDC, and NICHD. You will have an opportunity to chat with the speakers during the live Q/A session. You will be introduced to the NBSTRN team and they will conduct training sessions on NBSTRN tools and resources from 3 PM to 4 PM (EST).

This year, you will learn from speakers on the BabySeq2 Project (an implementation study of Whole Genome Sequencing as Screening in a Diverse Cohort of Healthy Infants), Recommended Uniform Screening Panel (RUSP) alignment legislation, advocacy efforts on Krabbe disease and Cystic Fibrosis research, ED3N (a National Newborn Screening Data Platform developed by CDC), new screening efforts for early hearing detection and intervention (EHDI) programs, and research development in Congenital Cytomegalovirus (CMV). See agenda at https://nbstrn.org/2022-Network-Meeting

Speaker Line-up (in EST time zone):

Tuesday July 19

12-1pm Claire Ellis and Dylan Simon – The EveryLife Foundation

1-2pm Stacy Pike-Langenfeld – The Legacy of Angels Foundation

2-3pm Ingrid Holm, MD, MPH – Boston Children’s Hospital

3-4pm Updates from NICHD and NBSTRN

Wednesday July 20

12-1pm Megan Pesch, MD – National CMV Foundation

1-2pm Karl White, PhD – Early Hearing Detection and Intervention (EHDI)

2-3pm Amy Gaviglio, CGC and Carla Cuthbert, PhD – CDC

3-4pm Updates from NICHD and NBSTRN

Each speaker will speak for 30-minutes, following a 15-minutes live-chat messaging session with attendees. The meeting will take place online virtually using the Zoom meeting platform.

To learn more about newborn screening research, visit www.nbstrn.org

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