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5th Annual NC EHDI CARE Project Parent Professional Collaborative, February 24-25, 2022, Durham NC

Registration is now open for the upcoming 5th Annual NC Parent Professional Collaborative. The presenting sponsor is NC EHDI and co-sponsored by the Children’s Cochlear Implant Center at UNC and the NC Division of Services for the Deaf and Hard of Hearing. The agenda is tentative and we have submitted for approval of 10 hours of continuing education.

The theme is “Diversity, Equity, Inclusion, Accessibility and Belonging”! The PPC brings both parents and professionals together for a 2 day experience and it will be in person at the Sheraton Imperial in Durham, NC. There is no charge for NC parents to attend. There is reduced registration for university students and EHDI staff outside of NC.

NCHAM Hosted Webinar on 10/13

Did you miss the great session on “Equality Through Direct Referrals to Parent-to-Parent Support” given during the recent Hands & Voices Leadership Conference? You are in luck! NCHAM is hosting a webinar on the topic on 10/13. Learn more and register at

Webinar Description:

Increasing our parent-to-parent support intakes by 228%, creating two new program roles and achieving jaw dropping data towards equitable family support across Illinois are what can arise from a parent to parent support program uniting with a state EHDI program through a formal business agreement. HRSA (Health Resources and Services Administration) recommends parent to parent support no later than 6 months of age. How do you achieve this important benchmark when the support program is not built into the state EHDI program? We will discuss the diversity transition a parent-to-parent support program experienced after shifting from an opt-in to opt-out program due to the business agreement with the state EHDI program. Join us as we share our rollout timeline, implementation recommendations, FEHDI data collection elements, changes and shifts that the parent-to-parent program experienced and our findings from the first year.

Presenters: Carrie Balian, Ginger Mullin, Gabrielle Bires and Kate Jordan

Deadline to Submit Abstract for the EHDI Conference is Monday, 10/3

Abstract submission for the 2023 National EHDI Conference closes at midnight on Monday, October 3, 2022. Submit abstracts for presentations or posters on topics related to improving EHDI!

The conference will be held in Cincinnati, OH March 5-7, 2023. Notification of acceptance will be made on or around November 18, 2022. For more information or to submit an abstract, visit

Call for Abstract Submissions – 2023 National EHDI Conference

The 2023 National EHDI Conference will be held in Cincinnati, OH March 5-7, 2023. Abstracts for presentations or posters that discuss one or more of the following topics related to improving EHDI programs are invited. To be considered, abstracts must be submitted by October 3, 2022. Notification of acceptance will be made on or around November 18, 2022. For more information or to submit an abstract, visit

Abstracts for presentations or posters can be submitted in one of the following twelve program tracks.

1. EHDI Program Enhancement (e.g., efforts to improve any component of an EHDI program, screening efficiency or validity, systems change initiatives, protocol improvement, sustainability, extending EHDI to other populations).

2. Audiological Services (e.g., improving diagnostic protocols, fitting and management of hearing aids, cochlear implants, or FM systems, improving access to hearing technology, counseling families following audiological diagnosis, tele-audiology).

3. Language Acquisition and Development (e.g., helping early intervention specialists, parents, and others understand early language acquisition and development processes, the impact that achieving age-appropriate language outcomes has on the social/emotional well-being of children who are DHH; research on how to use language assessments; information for families and service providers about communication tools and strategies to evaluate and maximize language acquisition/development for children who are DHH).

4. Early Intervention (e.g., improving educational programs for 0-5 year-old children who are DHH including children who are Deaf+, coordination and communication among early intervention and EHDI programs, transition between programs, effective use of resources, providing culturally competent services, reaching underserved populations, effective use of tele-services).

5. Medical Home (e.g., providing family-centered health care within a community-based system, coordinating care between primary care providers, specialists, subspecialists, and other health care professionals, delivering health care that is accessible, continuous, comprehensive, compassionate, culturally effective and efficient for all involved, hearing screening during well-child care).

6. Follow-up, Tracking and Data Management (e.g., strategies for improving loss to follow-up, innovative tracking systems, using tracking information for quality improvement activities).

7. Family Perspectives, Engagement, and Support (e.g., how to make EHDI programs more family friendly, strategies for how parents can be effectively engaged and buildmeaningful stakeholder partnerships in EHDI systems, implementation of effective parent support programs, parent education, including parents in EHDI program leadership).

8. Program Evaluation and Quality Improvement (e.g., efforts to assess quality of services or data, quality improvement efforts, results of statewide program evaluations, reporting to funders and administrators, strategies for assuring effective use of EHDI advisory committees, examples of how “small tests of change” have led to system-wide improvements).

9. EHDI Workforce, Advocacy, and Legislative/Policy Issues (e.g., pre-service and in-service education for EHDI providers, workforce shortages and how to reduce them, strategies to address knowledge gaps, mandates for insurance coverage for hearing technology, securing funding for program improvement, public awareness activities, state legislative or advocacy efforts)

10. Involvement of Adults Who are DHH in EHDI Programs (e.g. how to engage adults who are Deaf or Hard of Hearing (DHH) in improving EHDI systems, strategies for how adults who are DHH can build meaningful stakeholder partnerships within EHDI systems, implementation of effective DHH Mentor/Adult Role Model/Guide programs, how to use adults who are DHH in supporting families)

11. Collaboration and Coordination with Other Screening Programs (e.g., why and how EHDI systems can collaborate with emergency preparedness, congenital cytomegalovirus (cCMV) screening, metabolic (blood spot) screening, critical congenital heart defect (CCHD) screening, late onset hearing loss (LOHL)/periodic childhood hearing screening). Includes presentations about how the COVID-19 pandemic has affected EHDI programs and how EHDI programs have responded and planned for response to future emergent issues.

12. Diversity, Equity and Inclusion (e.g. effective strategies to reduce and mitigate the effects of social determinates of health and health disparities, how to recognize and mitigate the effects of explicit and implicit bias; effective strategies to ensure that activities are inclusive of and address the needs of the populations it serves, including geography, race, ethnicity, disability, gender, sexual orientation, family structure, socio-economic status).

Abstracts that are considered to be a commercial product endorsement in the opinion of the EHDI Program Committee will not be accepted. All abstracts must be in English. Presenters must register for the EHDI Conference.

Abstract Review and Scoring

The Early Hearing Detection and Intervention (EHDI) Annual Conference strives to provide key stakeholders an opportunity to identify areas of concern, promote collaboration, and share best practices. EHDI Conference participants range from state and local programs to the federal level and from academicians to families.

The Conference goals are to enhance the implementation of comprehensive state-based EHDI programs and improve EHDI services. This includes current research and research methods related to EHDI, cultural competence of providers and assessment of their abilities to work with children who have hearing loss, their families and communities and enhancing and creating new and ongoing working relationships.

Abstract submissions will be reviewed and scored according to the following criteria by a committee appointed by the EHDI Conference Planning Committee.

1. Relevance and significance to the early identification of hearing loss and early intervention services for infants and young children with hearing loss and their families. [1 – 20 points]

o The abstract should address a current topic and information appropriate for the purposes of the Conference goals.

o The abstract should address important issues or gaps related to improving state-based EHDI services.

o The abstract should inform, enable, or update others in improving EHDI services regarding potential issues related to clinical practice, education of professionals/families, or future research.

o The abstract should have the potential to advance the practice/knowledge base of EHDI.

o The abstract should expand the discussion or perspective to build on existing knowledge or address new knowledge, discoveries, methodologies, tools, technologies, or practices.

2. Overall clarity [1 – 10 points]

o The abstract should be well written and organized in a coherent manner.

o The amount of information to be presented should be appropriate for the proposed session length and format.

o The abstract should clearly describe the presentation’s goals and learner outcomes.

o The abstract should provide prospective participants enough information to determine if the session will meet their needs.

o If research results are included, they should be clearly described and supported by statistical findings with the conclusions supported by the results.

REGISTER NOW for the free 2022 Newborn Screening Translational Research Network (NBSTRN) Network Meeting

You are invited to 2022 Newborn Screening Translational Research Network (NBSTRN) Network Meeting: Efforts in Policy and Research to Advance Newborn Screening on July 19-20, 2022, from 12-4pm (EST).

The event is free, but participants must register at Once registered, you will receive a separate email with the Zoom information to attend the virtual meeting.

Each day, four sessions will highlight the latest research updates from NBSTRN partners, stakeholders, CDC, and NICHD. You will have an opportunity to chat with the speakers during the live Q/A session. You will be introduced to the NBSTRN team and they will conduct training sessions on NBSTRN tools and resources from 3 PM to 4 PM (EST).

This year, you will learn from speakers on the BabySeq2 Project (an implementation study of Whole Genome Sequencing as Screening in a Diverse Cohort of Healthy Infants), Recommended Uniform Screening Panel (RUSP) alignment legislation, advocacy efforts on Krabbe disease and Cystic Fibrosis research, ED3N (a National Newborn Screening Data Platform developed by CDC), new screening efforts for early hearing detection and intervention (EHDI) programs, and research development in Congenital Cytomegalovirus (CMV). See agenda at

Speaker Line-up (in EST time zone):

Tuesday July 19

12-1pm Claire Ellis and Dylan Simon – The EveryLife Foundation

1-2pm Stacy Pike-Langenfeld – The Legacy of Angels Foundation

2-3pm Ingrid Holm, MD, MPH – Boston Children’s Hospital

3-4pm Updates from NICHD and NBSTRN

Wednesday July 20

12-1pm Megan Pesch, MD – National CMV Foundation

1-2pm Karl White, PhD – Early Hearing Detection and Intervention (EHDI)

2-3pm Amy Gaviglio, CGC and Carla Cuthbert, PhD – CDC

3-4pm Updates from NICHD and NBSTRN

Each speaker will speak for 30-minutes, following a 15-minutes live-chat messaging session with attendees. The meeting will take place online virtually using the Zoom meeting platform.

To learn more about newborn screening research, visit

Please follow and tag on social media @NBSTRN Facebook, Instagram, Pinterest, Twitter, and LinkedIn. 

Detailed Agenda Posted for the 2022 CMV Public Health and Policy Conference: Register Today

We are excited to announce the detailed agenda for the 2022 CMV Public Health and Policy Conference is now posted. View the agenda here. We think you will find an intriguing mix of research, practice, public health, and parent perspective in our presentation line-up. Register by July 15 to save on costs. We look forward to seeing you in Ottawa for this one-of-a-kind conference on the prevention and treatment of congenital CMV.

Request for Information: Early Hearing Detection and Intervention Program

Let your voice be heard! The Health Resources and Services Administration (HRSA) has opened a request for information for the public to provide input for the next round of EHDI funding. Comments are due by July 18, 2022. More information on what and how to submit can be found here.